Patient Experience with Patient-Reported Outcome Measures in Neurologic Practice.
Abstract OBJECTIVE: To quantify the neurologic patient experience with patient-reported outcome measures (PROMs) and identify factors associated with a positive PROMs experience. METHODS: This retrospective study included all patients seen...Full Article
Patient Reported Outcomes Measurement Information System and Quality of Life in Neurological Disorders Measurement System to Evaluate Quality of Life for Children and Adolescents with Neurofibromatosis Type 1 Associated Plexiform Neurofibroma.
Abstract OBJECTIVE: To assess the health-related quality of life of children with neurofibromatosis type 1-related plexiform neurofibromas (pNF) using a battery of patient-reported outcome measures selected based on a conceptual...Full Article
An Item Bank to Measure Systems, Services, and Policies: Environmental Factors Affecting People with Disabilities.
Abstract OBJECTIVES: To develop a measure of perceived systems, services, and policies facilitators (see Chapter 5 of the International Classification of Functioning, Disability and Health) for people with neurologic disabilities...Full Article
An Evaluation of Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus Using PROMIS and Neuro-QoL.
Abstract Systemic lupus erythematosus (SLE) is a multi-organ chronic autoimmune disease that can negatively affect patients’ health-related quality of life (HRQOL). This study evaluated HRQOL of SLE patients using questionnaires...Full Article
Quality of Life for Patients with Neurofibromatosis Type 1 Associated Plexiform Neurofibromas (Pnf).
Objectives Neurofibromatosis Type 1 plexiform neurofibromas (pNFs) are associated with a variety of symptoms and concerns that affect patients’ quality of life (QOL); yet most research limited in studying pain....Full Article
Assessment of Upper Extremity Function in Multiple Sclerosis: Review and Opinion.
Abstract Upper extremity (UE) dysfunction may be present in up to ˜80% of individuals with multiple sclerosis (MS), although its importance may be under-recognized relative to walking impairment, which is...Full Article