Prospective longitudinal cohort study of patient recovery after major gastrointestinal surgery: is there a difference between minimally invasive and open approaches?
Background: Surgeons use the absence of post-operative complications to define recovery while patients define recovery as return to normal function. We aimed to better define the recovery process after minimally invasive...Full Article
PROMIS Global Health item nonresponse: is it better to impute missing item responses before computing T-scores?
Purpose: Item response theory (IRT) scoring provides T-scores for physical and mental health subscales on the Patient-Reported Outcomes Measurement Information System Global Health questionnaire (PROMIS-GH) even when relevant items are skipped....Full Article
Financial burden is associated with worse health-related quality of life in adults with multiple endocrine neoplasia type 1
Abstract Background: Health-related quality of life and financial burden among patients with multiple endocrine neoplasia type 1 is poorly described. It is not known how financial burden influences health-related quality of...Full Article
Comparison of legacy quality of life measures with the electronic quality of life measuring system (NIH PROMIS) in glioblastoma patients
Background: Health-related quality of life (QoL) and patient reported outcomes are an essential component of patient-care and research. The National Institute of Health sponsored electronic Patient-Reported Outcomes Measurement Information System (PROMIS)...Full Article
Metastatic breast cancer patients’ expectations and priorities for symptom improvement
Purpose: Little research has examined cancer patients’ expectations, goals, and priorities for symptom improvement. Thus, we examined these outcomes in metastatic breast cancer patients to provide patients’ perspectives on clinically meaningful...Full Article
Initial report of the osteogenesis imperfecta adult natural history initiative
Background A better understanding of the natural history of osteogenesis imperfecta (OI) in adulthood should improve health care for patients with this rare condition. Methods The Osteogenesis Imperfecta Foundation established...Full Article