Factors Associated With Communicative Participation in Amyotrophic Lateral Sclerosis
PURPOSE: People with amyotrophic lateral sclerosis frequently experience bulbar impairment and dysarthria that may restrict their ability to take part in everyday communication situations. The aim of this study is...Full Article
HDQLIFE: The Development of Two New Computer Adaptive Tests for Use in Huntington Disease, Speech Difficulties, and Swallowing Difficulties.
Abstract PURPOSE: Huntington disease (HD) is an autosomal dominant neurodegenerative disease which results in several progressive symptoms, including bulbar dysfunction (i.e., speech and swallowing difficulties). Although difficulties in speech and...Full Article
HDQLIFE: Development and Assessment of Health-Related Quality of Life in Huntington Disease (Hd).
Abstract PURPOSE: Huntington disease (HD) is a chronic, debilitating genetic disease that affects physical, emotional, cognitive, and social health. Existing patient-reported outcomes (PROs) of health-related quality of life (HRQOL) used...Full Article
Patient‐Reported Outcomes in Huntington’s Disease: Quality of Life in Neurological Disorders (Neuro‐Qol) and Huntington’s Disease Health‐Related Quality of Life (HDQLIFE) Physical Function Measures.
Abstract BACKGROUND: There is a need for patient-reported outcome measures that capture the impact that motor impairments have on health-related quality of life in individuals with Huntington’s disease. OBJECTIVES: The...Full Article
Variables Associated with Communicative Participation after Head and Neck Cancer.
Key Points Question Which variables are significantly associated with communicative participation outcomes in adults with head and neck cancer? Findings In this study of 197 survey respondents, 4 significant variables emerged—self-rated speech...Full Article
Long-term quality of life in patients with vestibular schwannoma: an international multicenter cross-sectional study comparing microsurgery, stereotactic radiosurgery, observation, and nontumor controls.
OBJECT The optimal treatment for sporadic vestibular schwannoma (VS) is highly controversial. To date, the majority of studies comparing treatment modalities have focused on a narrow scope of technical outcomes...Full Article